News on the #LBBill second draft

It is now four long months since the 12 Days of the #LBBill Christmas; we know we’ve been silent in that time here (there has been some discussion on twitter and facebook), but we thought blog readers were long overdue an update. Perhaps the most significant development has been the publication of the government consultation Green Paper: No voice unheard, no right ignored. Norman Lamb paid tribute to the #JusticeforLB team when he launched it (that includes you if you’re reading this and supporting the LBBill) and you can see our response here. So, what has happened for the LBBill in 2015 so far?

1) Feedback

We have spent time pouring over the feedback that you’ve all provided so far. You can see most of the feedback here, and there has been some sent by email. This has been absolutely critical to the process, we are insistent that the LBBill will represent what you tell us you would like, as far as we can bring all of that together. This is a crowdsourced bill, so your input really does matter.

LBBill Feedback Meeting

2) Meeting with interested people

Last month we held a meeting in London (with some joining by phone remotely) to bring together a group of interested people who had given us feedback. This group was made up of representatives from Disabled People’s Organisations, User-Led Organisations, Charities, Providers, Parents and Carers. We included as many people as the room would fit and we tried to make the group as diverse as possible. The meeting included people who had organised events to gather feedback on the first draft of the Bill, and we discussed that feedback to inform a second draft.

3) Discussion on- and offline

One of the joys of being involved with the LBBill is the enthusiasm for it, on and offline. So far this year people have spoken about the Bill at a number of events, conferences, discussions and workshops. These occasions have ranged from a self-advocate conference in Blackpool with karaoke, to online discussions in the early hours of the morning, to an All Party Parliamentary Group meeting in the House of Commons; every opportunity to discuss the Bill is important, we need more people to consider what a good, messy life for disabled people looks like.

LBBill Blackpool Conference

4) Draft 2

Following these meetings and events, the discussion and feedback was considered further and a Draft 2 was written. This draft should be available to share at the end of this month (April). We were ambitious and had initially hoped we could turn it around by the end of March but we are determined not to share a draft unless it is fully accessible, so we are taking a little longer to get the easy-read version right. Keep your eyes peeled but we should share something later this month.

5) LBBill Film

We are truly delighted to share with you this film which has been produced since Christmas. Filmed, edited and produced voluntarily by the awesome Luke Tchalenko, using footage from the November meeting, we hope that you find it useful and we’d like to see it shared far and wide:

So, even though we have been quiet on the blog, we hope you agree we’ve been busy and that we are making progress. The next stage in the process is for us to share Draft 2 (by the end of this month) and then to gather more feedback from you all.

There are also a number of occasions coming up where you can join a discussion about the LBBill. These include the Inclusion North event on National Politics and the LBBill which is taking place in Leeds on 28 April (please email Marie if you wish to attend) and the NWTDT | Pathways Associates CIC Green Paper consultation event in Preston on 12 May (please email Danielle if you wish to attend).

A new parliament will be formed in early May and we will then look to see what we can arrange around lobbying MPs, in the meantime if parliamentary candidates come knocking at your door, be sure to ask them what their policy is on supporting disabled people, and please do tell them about the LBBill.

Day 1: Twelve Days of Christmas #LBBill

It’s the first day of Christmas and even though we know most of you will likely have dinner to cook, or be in a sprout coma for the next couple of days, or working and caring around the clock… we wanted to take this opportunity to wish you a Happy Christmas, and also to direct your thinking towards the #LBBill.

Over the Twelve Days of Christmas we’ll send you an email each day asking for your thoughts, comments or feedback. We will focus on one element of the proposed #LBBill, or our journey together so far, each day.

To kick us off, in case any of you missed it during the #JusticeforLB Advent Calendar (it was Day 7) we have Santa Claus discussing the #LBBill

Secondly, we have an audio introduction with easy-read images requesting feedback on the #LBBill. Please share this far and wide with your networks:

We’ll be back in touch tomorrow, but for now, please accept our wishes for a Happy Christmas.

#LBBill – draft one launched

We are delighted to be able to share the first draft of the LB Bill with you all.

We are looking forward to discussing how the law needs to change.

We think there are two key things that must change. We wish to:

  1. make it a legal reality for disabled people to be fully included in their communities
  2. make it harder for the State to force disabled people to leave their homes against their wishes, or the wishes of their families.

There are five documents you can download and read (right click on the image).

Book One: About the #LBBill

BookOne_LBBill

Book Two: What we want the #LBBill to say

Book2_LBBill

Word Bank – a glossary that explains some terms

WordBank

We also have full text versions if you’d prefer.

Explanatory Notes about the #LBBill

LBBill Explanatory Notes

Draft One of the #LBBill

First draft LBBill

This really is a first draft and we are seeking your thoughts, comments and feedback.

The draft will change in response to what you tell us and we will write a new version early in 2015.

Please download the documents, share them far and wide, and let us know what you think.

You can tweet us @JusticeforLB, discuss it on our facebook group, or send us an email to LBBillFeedback@gmail.com.

Our campaign has been entirely crowdsourced, we are relying on interested people to help us develop what the #LBBill should say. Please share your ideas with us about how you will collect views and input, so we can share those ideas with others.

Introducing LBBill to the Department of Health

Today a small number of #JusticeforLB supporters visited the Department of Health (Steve, Sara, Rich, Mark and George).

DHMeeting031114

We met two people, Sarah McClinton and Frances Smethurst, who are responsible for the policies that apply to disabled people.

They were interested in hearing about Connor’s experience and Steven’s experience and the experience of their families in supporting them.

We introduced the #JusticeforLB campaign to them, and talked about our hopes for the #LBBill.

Afterwards we recorded a short film to share with you all.

Tomorrow, Tuesday 4 November, we will share the first draft version of the LBBill and are really looking forward to your feedback, thoughts and comments.

#LBBill: turning social care policymaking on its head

We were contacted a couple of weeks ago by a few journalists interested in what we are doing.

Today Community Care published an article we wrote about LB Bill, why we’re doing it and how it works. You can read it here.

Screenshot 2014-10-27 11.56.36

If you’ve just found us today after reading the article, welcome.

You can follow the blog (blue FOLLOW button in top right) and then you’ll get an email each time we publish an update.

We hope to have the first draft of the Bill very soon and look forward to your feedback.